A Discouraging Day

This has been a yucky day. Here's where we are - Jade is still running her fever - 3 days into the antibiotics for the ear infection. That was disappointing, but I know antibiotics don't do anything for viral, so I am still hopeful it is viral. Dr. Ryan (her pediatrician) finally called and said he and Dr. Lemons consulted and decided to rule out viral and get the bone scan before we jump onto the bone marrow test, especially since the smear pointed to viral. So he ordered some bloodwork to test for a few viral infection possibilities that would last this long. Then the nurse called me and said they could not schedule the bone scan until the 19th!! Are you kidding me! I can't wait until the 19th! I am about to pop, and we need this figured out now! I called the oncologist in tears, I was so frustrated. This is too stressful to wait a full week. The problem is they have to wait for a full sedation team because you have to lay still for a while for the test. So we worked out to try it on Monday without the sedation, Jade is not high strung and he said it is not as scary as an MRI, many kids are just fine without it. If it happens to not work, we will keep our Thursday appt and do it with sedation. So we will have to wait for answers, maybe in the meantime we will get the blood results and find out it is viral, at least that would explain something.
In the midst of all the phone calls today, clinic called and Brinley didn't make counts to start chemo tomorrow. Her ANC is still only 400 and she needs to be at 700. I just started crying again. I wanted so bad to start maintenance tomorrow, so we could hopefully get the 5 day steroid pulse behind us before the baby comes. Now we have to wait until next week, one week from my due date. I know it is for the best, but I am so tired of waiting. Waiting for everything. Patience is so hard to learn. You would think I would have learned it by now. I will update when I know something, but I don't know when that will be. Please keep us in your prayers.