Brinley went to clinic yesterday for her chemo.  How quickly we are reminded of how miserable this can be for her!  Clinic went fine, she was happy and everyone commented on how good she looks (told ya!).  She gained almost a pound and actually grew in height for the first time since she started chemo!  Almost an inch!!  She got her vincristine and started 5 days of steroids.  It kicked in almost immediately this time.  Usually it takes a couple days, but she was up until 1AM crying that her tummy hurt.  Today she is crying a lot and her jaw pain is back, she is just feeling sick.  Blasted chemo.  It makes me so sad for her to feel sick.  I really enjoyed that break, now we will have a week of trying to help her as best we can to feel okay.  I know it is only a week, but I think having so much time to feel normal and then coming back to this same old story is a little frustrating.  Especially knowing this will be the cycle for almost 2 years.  My sister put it perfectly, it's like at the beginning of spring, and you get a taste of the beautiful weather and get excited for it, you feel the warm sun on your face, you take the kids to the park, you smile just to step outside.  Then another winter storm hits, and you are so stinking sick of winter that you want to scream, because that nice weather felt soooo good.  That's what it feels like, we'll have a winter storm once a month.  And we are tired of winter.  We are tired of giving our 2 year old chemo.  We are tired of her feeling sick.  

Still glad she's in maintenance and fever free for over a month now, though.  That's something to be thankful for for sure!  Go Brinley!  


Michelle said...

praying for your sweet girl. if there are any specific prayer requests that aren't obvious from your posts, please let me know - i'd love to lift them up to the Lord in prayer. :-)

- michelle

Anonymous said...

aww.. poor baby. I know you hate complaing because "It could be worse" but it still stinks!! I hope ur sweet brin brin feels better soon. *fingers crossed*

miss N Hanks said...

Here's to wishing you all a good week and little "big girl" Brinley feeling better....tons of love & hugs xoxoxoxoxo
A Nancy