tag:blogger.com,1999:blog-2043057503839031095.post6701607365569843961..comments2022-12-04T01:44:37.162-08:00Comments on Sweet Brin Brin: 1/20/11 - Forever ChangedDavid Hhttp://www.blogger.com/profile/05767287528332735335noreply@blogger.comBlogger7125tag:blogger.com,1999:blog-2043057503839031095.post-47938662237248445512011-02-10T13:10:12.401-08:002011-02-10T13:10:12.401-08:00Beautifully written. The analogy of the hanging b...Beautifully written. The analogy of the hanging boulder is a perfect one. There are times that it's dropping seems almost inevitable, so every glitch seems less a surprise and almost a confirmation of our fears. <br /><br />I wonder too if it is going from the familiar to the unfamiliar. When OT life becomes our new normal, maybe those fears lessen.<br /><br />It always makes me feel good to read what you write, because you have a gift for articulating my own fears and feelings.<br /><br />I hope Brinley gets over the gunkiness soon.Adrianoreply@blogger.comtag:blogger.com,1999:blog-2043057503839031095.post-80862263439998420432011-02-10T12:51:02.667-08:002011-02-10T12:51:02.667-08:00As always, you are able to express beautifully exa...As always, you are able to express beautifully exactly how I feel. I am sorry Brinley's having such a rough time of it lately.Unknownhttps://www.blogger.com/profile/07663176786363424598noreply@blogger.comtag:blogger.com,1999:blog-2043057503839031095.post-26282311893789600462011-01-23T15:12:12.101-08:002011-01-23T15:12:12.101-08:00I love the analogy of the boulder hanging over our...I love the analogy of the boulder hanging over our heads waiting to be cut loose...it's so true! <br />I don't think I will feel 'at ease' until we reach the 5 year mark...then and only then,I might not feel so much anxiety over every element. Our innocence of 'healthy' kids has been taken away from us and I don't know if I will every gain it back. <br />hang in there...'this too shall pass' and we are praying that Brinley can continue down the path of good health!Amynoreply@blogger.comtag:blogger.com,1999:blog-2043057503839031095.post-15741705959245341332011-01-21T10:42:11.147-08:002011-01-21T10:42:11.147-08:00I know EXACTLY what you are saying. I can say that...I know EXACTLY what you are saying. I can say that after being off treatment for 1+ years my logical side is slightly louder than my psychotic side, but only by a small percentage. Maybe it's 60-40 now and it used to be 40-60.<br /><br />I think it will continue to get better, but it will always be in the back of our minds :( <br /><br />It's another part of innocence that I feel has been stolen.nsudburyfamhttps://www.blogger.com/profile/09796418747139476514noreply@blogger.comtag:blogger.com,1999:blog-2043057503839031095.post-19297934462270082882011-01-21T09:07:20.047-08:002011-01-21T09:07:20.047-08:00oh, kristin, i feel you. i think often about how w...oh, kristin, i feel you. i think often about how we are forever changed because of cancer. our lives are on a different track now then they were before. and i know that when elena is OT, i will be the exact same way as you. i already do it now with my other daughter. she has little bruises on her legs and i freak out to my husband that she must be getting leukemia, too. sometimes all the worrying and wondering feels like a heavy burden. it is really hard not to know what you can plan on or where life will take you or if it is really gone. i hate not knowing. i guess that's where we have to put trust in the savior. but it's really hard - something that i think i will be working on for a long time. <br /><br />i hope that as time passes, it gets better for you guys and you don't have to worry as much. and we will be praying for brinley's cancer to stay away for good. you guys have come so far!Brianahttps://www.blogger.com/profile/13877636200359469739noreply@blogger.comtag:blogger.com,1999:blog-2043057503839031095.post-87516678418877098612011-01-20T22:01:40.421-08:002011-01-20T22:01:40.421-08:00It does get better...it never goes away, but it...It does get better...it never goes away, but it's not the first thought that races through your brain. The first year was the hardest. Every fever, every time she had a headache, I wanted to throw up. <br /><br />We are now more than 3 years OT and it's not the first thing I think of when she says she's not feeling well. But it's still something that crosses my mind.<br /><br />You are forever changed as a mother. That is true and always will be. Just as your daughter is forever changed, too. The cancer may be gone, but so is the innocence of childhood and that never comes back. That's not all bad, though. Marielle is very sweet, very empathetic, watches out for the "underdog" in the classroom, on the playground, befriends the new kids in school...all of that, I know, because she was once "different" and can relate to those kids.Mariehttps://www.blogger.com/profile/10141744629293459562noreply@blogger.comtag:blogger.com,1999:blog-2043057503839031095.post-6766300140962470722011-01-20T21:30:35.491-08:002011-01-20T21:30:35.491-08:00I hope that fear subsides over time somewhat... My...I hope that fear subsides over time somewhat... My sister in law is fighting cancer still but it's not looking good for her. She is on hospice now. :( She has six kids and her oldest is 12. Cancer sucks. It really does. I pray that Brinley's fight is truly over!!! There will be more trials to come but hopefully with other things like boyfriends and stuff :) You guys are awesome!susi and adamhttps://www.blogger.com/profile/07138159597751991596noreply@blogger.com