We have been busy, busy, busy. School is back in, so we are getting back into a routine. Jade will actually start next week for kindergarten, but Taylor is in Junior High! Yikes!
Quite honestly, it is hard to know what I am feeling lately, so I will just update and that will be that. Brinley has been very up and down. This is usually the time of month that she is quite happy and normal, but for some reason this month she has been particularly grouchy. She is sleeping late and just doing a lot more crying and tantrums than usual. It has been difficult, but she is easily distracted. It just makes getting anything done around here an impossible task. I find myself just figuring out ways to keep everyone happy. But it is working out.
She had her counts checked yesterday and we found out she is almost neutropenic again, her ANC was 600. Which means her white fighting cells are very low. She is already at 50% of the recommended dose of chemo for her size and I had hoped her body would handle that enough to get her back to a higher dose. But they had to cut her dose to 25% now, her body is just not metabolizing the chemo very well. I tend to think her little body is just tired. It has been going through almost a year of chemo now, it has to be worn down. So we will see if her bone marrow recovers on the 25% dose. I understand the reasoning behind the lower dose, they certainly can't put her body at constant risk, and obviously the chemo is WORKING if her counts are that low. I guess I just want the blasted cancer gone forever, and that teeny tiny dose is making me uncomfortable.
We have been having some good, fun times, though. Our trip to Vegas was great. It was so fun to see my family and the kids had a wonderful time swimming at grandma's all weekend. It was definately too quick of a trip, we didn't see many of the people we were hoping to see, it all just flew by.
As an official "Wish family" now, we were also invited to the Wish Family Reunion at Seven Peaks Water Park today. We got free admission and Subway provided lunch for all the Wish families. It was such a blast to go somewhere we otherwise would not have been able to afford and not worry about a thing. Cheezy moment of the day: Holding Mylee, watching David, Taylor, Jade and Brinley in the wave pool, each one of them as happy as can be, with big huge smiles on their faces. It gave me warm fuzzies :) Right at that moment David turned to me and waved with his big grin, and I had my big grin and waved back. Major cheese, but hey, what can I say. I tucked it into my "bottle" of moments...THANK YOU MAKE A WISH!
To say we cannot wait for Disney World in a month would be the understatement of the year. We are so excited, Brinley keeps saying "we are going to see Little mermaid on and airplane! It's NOT scary, huh mommy?" I think she's a little nervous about the plane ride. I have no idea where she got this, but she is saying "we are going when my hair is long like Jade's." I am trying to figure where the heck that came from. Maybe Jade, but that is what she is saying.
Terrible picture of me, but it's the only Vegas one there was, so here's our Vegas trip with me and the girls!
Brinley opening her scooter on her B-Day. She has been riding it ever since, she thinks she is quite the big girl now.
Okay, do you think Jade could possibly smile ANY bigger?? She was so funny, she couldn't stop jumping and screaming and talking about the first slide she went on.
I had to put this one in, this is Brinley sharing the joy with the first person she saw off the slide. I can't help but wonder what the poor woman was thinking.
Cute Jade. No Mylee pics! She was in my arms on the other side of the camera :(