The boy, Cody, who I posted about last post passed away this morning. I am so sad today. I will try to find a distraction, but his family has no such luxury, they will have a hole in their hearts for a long time. Please pray for them. http://deckapes.blogspot.com/
Brinley got a blood transfusion today because her hematocrit was 22 yesterday, very low. Her platelets had actually gone up, so she didn't need any platelets. So we went into clinic for the transfusion and it takes pretty much all day. She did fine and hopefully will be a little happier now, she's been very grouchy. Someone from church offered to bring us dinner tonight and I am sooo grateful, because I am pooped. Jade has been crying since we got home and is being very mean to Brinley. So there is a lot of girl screaming going on. Frustrating.
The infusion room was totally full. There were a few older kids in there getting their chemo and they were very sick. One little boy next to us was probably about 8 or so. He wouldn't let the nurses near his line. He was crying and saying "I don't want that stupid chemo! I don't want it!" over and over. Who can blame him?? It took them quite a while to calm him down and convince him to let them give him the chemo. One thing I'm grateful for is that Brinley doesn't make the connection that going to clinic getting the chemo is what makes her feel yucky. One of the blessings of her being so young going through this.
I hate seeing all these kids suffer so much. Brinley is doing quite well at kicking cancer's butt, and we are so happy with her progress, but it is such a horrible disease. I've been following a blog about a young boy named Cody who is not going to win the fight. It is heartbreaking to read the words of his Dad. You can read about him at http://deckapes.blogspot.com/. He is in such pain, his liver is failing and the cancer is all over his lungs. They can't treat it anymore because it has ruined his liver and any more chemo would give him liver failure, see the problem? They now have to tell his siblings that their brother only has a couple more weeks to live. No one should have to lose their child like that. No child should have to suffer like that. He has been through 4, maybe 5 years of this fight already. It truly is a beast. If you get a chance go read their blog and add them to your prayers. It will make you want to grab your kids and hold them tight.
This hat wins the most original for sure...we got a good laugh.
The kids got to spend some time with Grandma and Grandpa Torres last week.
The home health nurse taught David how to do the chemo last week
We laughed imagining the things that could be coming out of her mouth right now...our favorite was "mom, you better step back with that camera before I smash it"
I can barely even see her eyelashes any more, I miss them.
Sweet Jade coloring a picture for her sister
Ok, gotta get some preggie pics in, I was just trying to be dramatic
Date night, YAY!
Brinley's Cancer Fighting Friends
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