I finally called clinic yesterday because Brinley could not hold anything down, they decided they wanted to see her. It was 3:20 and they close at 4, and I COULD have gotten there by 4, but I guess with it being Friday night, no one wanted to stay to see her, so they made her go to the ER. Maybe they had some fun plans for the weekend. (Do I sound bitter....I guess the $100 copay and the 4 hours of waiting at the ER makes me wish they would do a little bending for us....I know, selfish of me -workin on that)
Great, Brinley is sick today. She was up throwing up all night last night and a few times today. Luckily it is not accompanied with a fever (yet), so it should just pass without having to go up to the hospital. We'll see, but she is pretty miserable. David couldn't even get her chemo in last night, she threw up everything he tried to give her. Bummer, no fun when kids are sick. Jade also has a doctor appt. on Monday about the low fever/mono thing. Yep it's still there.
Brinley has been otherwise happy, Jade is asking every day when she will be 5 (and it's not until JULY!), Taylor has been especially pleasant to be around, and Mylee is still an angel, she started smiling...sooo cute. I'll try to get some pictures up this weekend, everyone is changing so fast, especially Brinley and Mylee. Brinley looks so stinking cute with her hair growing back in. I've found many more people have been staring at us, I guess when she's cue ball bald, they know she has cancer and quickly look away. But when it looks like your mom gave you a buzz cut, well, I guess they don't hold back so much. One woman at Target walked right up and said, "Oh, you are so cute! Did you get ahold of a razor??" It was a very awkward moment, I really didn't want to embarrass her, but she was staring at me for an answer, and laughing it off wasn't satisfying her. So I chuckled for a minute, then had to say "no, she has leukemia." Poor woman was so embarrassed.
My kids say things all the time that just make me laugh. I wanted to share some things they have said that you would only hear in a cancer family.
1. (Background: Brinley has a central line, it is a tube that goes into her chest where she gets chemo. We have to flush it every day, it has become like changing a diaper, just something we do daily) When we brought Mylee home from the hospital Brinley was sitting on the couch for her turn to hold her. The second she got her, she looked up at us with a very serious expression and said "We should flush her line!" Like everyone has a line to flush...
2. At Target, Jade saw a baby who didn't have hair yet and in a nice loud voice said, "Look Mom, that baby has cancer!" We walked away quickly as I explained that the baby did not have cancer, she just didn't have hair yet...
3. Instead of "let's go play barbies!" I quite often hear "let's go play hospital!" Or "pretend I have cancer."
4. When taking Jade for a haircut, she got a look of panic on her face and exclaimed "No! I don't want a haircut like Brinley's!" No dear, just a trim.
5. Before asking to go anywhere, Jade and Taylor will ask "How are Brinley's counts?"
Brinley's Cancer Fighting Friends
- ► 2011 (22)
- ► 2010 (68)
- ▼ 2009 (135)
- ► 2008 (93)