This first picture has a story to go with it. A couple weeks ago, I asked the girls to clean up the living room. Taylor was in charge. She told the girls to take their stuff and put it away. A few minutes later Brinley came in and proudly said "Taylor, I cleaned up ALL my stuff!" Later that night I went into the downstairs bathroom, and could barely open the door....when I started asking around, I found out these were all the things Taylor had asked Brinley to put away.


This is to show how long her hair is growing in the back, and a cute cuddle with the girls too!

The front view...

Master Shifu (sp?)

Master Shifu...

And when one does something funny, they all must try it. Once again, master shifu....

Ho, ho, ho

Our traditional santa hats we wear while putting up the tree.



Jade got the position of star placer this year.

This is to show how insane Mylee's hair is. This is just a few minutes after a bath, the top of it (and ONLY the top of it) completely curls up into a fro. It is so funny!

Brinley and Mylee (notice the ponytails!)

Decorating sugar cookies, and Taylor getting busted snitching some frosting.

This was at clinic. Our favorite therapy dog, Elliot, dressed up as a reindeer. Brinley got to feed him some cheese, she absolutely loved it.

I thought this was the sweetest thing, Brinley was feeling so sick from the chemo, and I saw them just watching TV together cuddling.

The first big snow, it was exciting!

It was too powdery to build a snowman, so Brinley and I figured out a way make one anyway, if you can see it.


There, I've updated with some pictures of us. We are through with one more month of chemo, Wahooooo! Eleven to go! The steroids wore off a little quicker than usual and the girls were playing happily all day yesterday, and she stayed asleep all night already. Time for a good few weeks!!!!!!!!!!!!! We are getting excited about Christmas. It will be a small one, but really, no one cares, we have each other. And we are so happy.

I feel like I left everyone hanging, so I will give a quick update before bed. Sorry for the request for prayers and then...nothing! Well the LP went absolutely wonderfully. The best one yet, I think I will have to solicit prayers more often for those. She woke up fine, no crying, and did not get any fever. Her ANC was at 1300, so they are leaving her at 25% methotrexate and 50% 6MP, and we'll see what next month's counts look like. Clinic was such a long day. They had to give her chemo before the LP, so they did that, and we chatted with her doctors. I sure love them. Then we headed down for the LP. Then back up for her pentamidine. That always makes her sick during the infusion, but then she feels better when it's over. The pharmacy made us wait forever, until one of the nurses had to "break some knee caps" as she put it, and finally got the meds. LOL


Steroids have been rough this time, they increased her dose because she is growing (woot!woot!), but it has made things more difficult. She has the usual sleeplessness, and is quite sick from the dreadful little pills. They have been causing her some bone pain this time, she hasn't even wanted to walk the last couple days and says her bones hurt. So I have been carrying her around most of the time. We are pretty beat, hence the lack of updates. This morning was her last dose, it will be a few days of wearing off and we will be back in business.

She was asking all day yesterday to go to the store, so I finally took her and got a couple things at the grocery store. She was so beat (maybe from getting 5 HOURS of sleep) she fell asleep right in the back of the cart. She missed the whole thing!

Her food cravings have been different this month too. Usually she craves junk food, but this time it has stayed pretty healthy. It's been a nice change. Well, aside from the 10 bowls of fruity pebbles a day, she is choosing somewhat healthy foods. Bread and butter, stuff like that. Thanks for checking in, and look for some pictures soon, I have a lot of them to post, just can't seem to find the time.