I took Brinley for her monthly chemo today. I have been very worried about her behavior and pains this month, and found out my worries are warranted. I had kept a log of the things she is complaining about, when they are happening and how long it lasts. I presented it to Dr. Druzgal, and she confirmed to me that this is certainly cause to worry. It may sound crazy, but I needed to hear that. She told me exactly what I needed from her, that I have a good reason to worry. It didn't make me worry any more or any less, it just made me feel like I am not crazy. It's an awful feeling to worry about everything now days, and I am constantly wondering if I am over-reacting. So no, I am not over-reacting. Thank you Dr. Druzgal. We met with the other oncologist, Dr. Fluchel and he was also in agreement.
I have a story to tell you. I just learned it tonight, shame on me for not knowing this story from the beginning of our association with this wonderful organization, HopeKids. In 2008, right before Brinley was diagnosed, there was a family who moved here to Utah. They left Chandler, Arizona, the place they were comfortable, their home, their parents. Not because they have family here, not because they were offered a job with $$ they couldn't resist. They moved here to bring hope to children with life-threatening illnesses. They moved here to open a chapter of HopeKids in Utah. We have been a HopeKids family for quite a few months now, and we absolutely LOVE them. Here is what makes them different. This couple, the Oldhams, take the time to get to know each and every HopeKids family. They visit them at the hospital, they worry about them, they pray for them, I'm certain by name. They have so many events, constantly giving us something fun and free to do. Movies, parties, craft nights, etc. Don't they sound great? Well, there's more. They lost a daughter to cancer 5 years ago. They know the battle we are in. They watched their daughter fight it until it took her life.
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