Brinley had a fever yesterday and we went to clinic, but she was on the tail end of the virus and we probably could have just stayed home. She is feeling much better today, with just a little cough that I am hoping will be gone by the time she goes in for her LP next Thursday. Thank you for checking in and for your prayers. We truly have a wonderful support system and I am so thankful for offers to help.
Likely you've noticed that many people don't finish. There are many on the side of the path. They used to be running. There was a time when they kept the pace. But then discouragement set in. They became tired. They didn't think the race would be this tough.
It is times like this that we need to realize that the race is not ours, but God's to finish. In our weakness, He is made strong. I say, "I am not able." He says, "I am." We don't have the answers. He does.
Listen closely... if we lift our eyes off of ourselves and our circumstances, it is much easier to see the path before us!
We can then run with peace and confidence. We can finish strong. "
Brinley was teetering with a fever all day yesterday. I talked to the onc and they said if she had 100.3 for an hour we needed to bring her in for a culture and dose of IV antibiotics again. Well, it would go to 100.8, 15 minutes later it would be 99.5. This happened all day long. Until, of course, clinic was closed, then it decided to stick at 100.7 or so for over an hour. So I had to take her to the ER again. We decided to try a closer ER this time, even though we had sworn to never do that again. I just couldn't go sit at Primary's again for 7 hours. So we tried the new hospital in Riverton. I was really nervous, but it went great. Brinley's fever had disappeared when we got there of course, down to the 99's. But I was glad we went because it was back by the time we left. It only took 3 1/2 hours at this hospital, so we got home around 10:30pm. The nurse was wonderful and although she made me nervous because she does not have much experience with ports, she was able to access her on the first poke and we both breathed a sigh of relief. The took a chest X-ray and checked counts. Her ANC is headed downward, at 1200, so still high enough to come home, but went down quite a bit in one day. That can signify a virus, which we are all convinced this is. The chest x-ray showed mild viral bronchitis, and with her cough sounding so nasty the ER doctor wants me to follow up with clinic this morning to make sure they take a look at the x-ray, but he said in a normal healthy person he would not treat it. Brinley was her silly self, so I am not too worried, although I don't like the sound of her cough. When we got home, she was being a complete goofball, kissing herself in the mirror when I was trying to brush her teeth, driving us crazy with her silliness when we just wanted her in bed! Okay, it was kind of funny. David and I sat down and watched Lost, then tried to find the way to bed through the mess. Well, he stayed up to work and I found the bed.
We got home about 10:00 last night from the ER. Her ANC was 2200, so she got a dose of IV antibiotics, they drew a culture and we got to come home. It took forever, the ER was absolutely packed with sick kids. They redid the whole ER and now how a special "clean" waiting area for kids like Brinley. They are technically supposed to get antibiotics in her within an hour of her getting there I've been told, but it was more like 3. Since I was quite certain it is viral I didn't push it and wasn't too worried about her, since she was playing and happy. Besides, they had their hands full, one of the nurses told me they had to call in every nurse on call.
Brinley's fever passed the 101 mark, so we are off to the ER and hoping for good counts so we won't be staying.
Today is one of my favorite holiday. Not because I love to get roses or chocolates. Not because I have someone special to share it with, not because of the chocolate or balloons or teddy bears. I love Valentine's Day because I have become aware of an emotion that is the sweetest thing in the whole world. Love. I love love. I love having relationships with people I love. Friends, family, kind-hearted people. I love this emotion and wouldn't even consider trading the heartache that comes with loving someone so intensely that when something happens to them it hurts so bad you don't know how you will survive. I love my family. I was feeling bad today about something. I came home and asked my family for a hug and it felt better. I just wanted to go home and be with people who love me for who I am.
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