Things are going so much better than I expected. I hate to be overly-optimistic, but I'm hoping it continues like this through all of DI and we can breeze right through. I'm holding my breath....

Start with the bad this week: One night of crying until 2 AM, 2 days after stopping the steroids. We're praying that starting them again Thursday won't start some sleepless nights. Brinley can be very tempermental and her bad moods do affect the whole family. She has been very demanding and clingy (those of you with 2-year-olds are thinking "yeah, so what! Mine is too!") Lol, so a lot of it is the age combined with the meds. Her eating is wacky, she wants corn dogs or mac and cheese for breakfast (sound familiar??) and asks for snacks every 10 minutes, but can never decide what snack she wants. We spend a lot of time staring at the pantry and frustrated because she has no idea what she wants. We hear "I hungry" very often. We are not able to go anywhere because we have the feeling her ANC may be low, so it makes for some very long days for those of us here. Poor Taylor has been out of school for 2 days and is dying to go somewhere and do something. It is very hard to not be able to take the kids to the library, or the store, or ANYWHERE for goodness sakes!!

Now for the good: We were so sure after the 2am episode it would continue for several nights, but she has slept all night since then, ahhhh. Although Brinley is easily angered, she has also been so funny and silly. She can make us crack up laughing, we are happy she is still being cute and silly and funny. And all of the food she is eating will hopefully put a couple missing pounds back on her skinny little body. So eat up Brinley girl!!! The best of all is that Brinley is more happy than she is miserable.

We go back in on Thursday for another chemo treatment and start the steroids again. I'll be posting again after that! Hope all is well with all of you wonderful people!!

5 comments:

LaAna said...

If it helps at all that sounds A LOT like our 2 year old, but I think mine is just a bit of a booger (to put it nicely)! I'm so happy that your burden has been a little easier. What troopers you all are. Our prayers are with you.

Marion said...

Just wanted you to know that I'm still here reading your blog regularly and praying for each of you, as well. I just don't have any amazing kind of comment to make. Just sending some love. . . .

Anonymous said...

Great news :) we'll take it where we can right? What is Brinley's favorite Herbalife shake? And do you need more? Hope to see you all on the 2nd.Love & hugs to all
Aunt Nancy

JohnH said...

It will be so fun to see you and Taylor and Jade for a couple of days this weekend. I'm glad you're having a bit of a respite from the intensity.

Adria said...

We have been having mac & cheese at least twice a day for weeks now. It's crazy. Hang in there! I'm glad DI is going so well.