We went to clinic today for some more chemo, she got the PEG shot, this is only the second time she has had this one. It's a shot in the leg, then you have to wait an hour after at the hospital to make sure she doesn't have an allergic reaction to it. I guess it is more common to react to it AFTER having received the first dose and the reaction is pretty violent, so they want it to happen at the hospital if it happens. Luckily she was fine. It was quite frustrating though because we were there for 3 hours, it always seems to take so long to do everything. We wait around for the pharmacy for at least an hour it seems every visit. I try to be patient, they really are great, but we just want to get out of there sometimes.

She'll get that shot one more time, I believe. She was maaaaaad! The nurse said it burns pretty bad going in, and it was a lot of fluid to push in. I always feel so bad when my kids get shots, even with the numbing cream, she screamed to high heaven! She has been telling everyone several times today "shot, doctor, leg, owies!" with a little frown on her face for added drama. She's good at adding dramatic faces, it's funny.

She's looking sicker every day to me, her eyes are getting shadows under them and she looks so little and skinny. She has been pretty happy though and her counts are good, she's a trooper. She woke up last night once, I am hoping it was a fluke and won't be a repeat of induction. We are still doing fine and are trying not to feel frustrated because we know things could be much worse (and may take a turn that way easily). Back to clinic on Thursday for another treatment...

3 comments:

Susanne Creer said...

Kristin---I admire you so much! Just wanted you to know that we're still thinking about you and Brinley. I'm sorry you are still enduring all of this!!!! Hugs to you -- wish I could make things easier somehow!

Ashley said...

Still thinking of you guys everyday and sending our love and positive thoughts!

JohnH said...

One day at a time...