This has been a yucky day. Here's where we are - Jade is still running her fever - 3 days into the antibiotics for the ear infection. That was disappointing, but I know antibiotics don't do anything for viral, so I am still hopeful it is viral. Dr. Ryan (her pediatrician) finally called and said he and Dr. Lemons consulted and decided to rule out viral and get the bone scan before we jump onto the bone marrow test, especially since the smear pointed to viral. So he ordered some bloodwork to test for a few viral infection possibilities that would last this long. Then the nurse called me and said they could not schedule the bone scan until the 19th!! Are you kidding me! I can't wait until the 19th! I am about to pop, and we need this figured out now! I called the oncologist in tears, I was so frustrated. This is too stressful to wait a full week. The problem is they have to wait for a full sedation team because you have to lay still for a while for the test. So we worked out to try it on Monday without the sedation, Jade is not high strung and he said it is not as scary as an MRI, many kids are just fine without it. If it happens to not work, we will keep our Thursday appt and do it with sedation. So we will have to wait for answers, maybe in the meantime we will get the blood results and find out it is viral, at least that would explain something.
In the midst of all the phone calls today, clinic called and Brinley didn't make counts to start chemo tomorrow. Her ANC is still only 400 and she needs to be at 700. I just started crying again. I wanted so bad to start maintenance tomorrow, so we could hopefully get the 5 day steroid pulse behind us before the baby comes. Now we have to wait until next week, one week from my due date. I know it is for the best, but I am so tired of waiting. Waiting for everything. Patience is so hard to learn. You would think I would have learned it by now. I will update when I know something, but I don't know when that will be. Please keep us in your prayers.

5 comments:

Stacy said...

Oh Kristin and David - what a long day for you all. I am so sorry things are going like this. I wish I could snap my fingers and take it all away. My heart hurts for you all. Know that you all are loved and prayed for by MANY. We love you and keep your head up.

Kathy Powell said...

I bet you were on pins and needles all day. I pray that you get a quick answer with a quick solution. All of you have been on my mind and in my heart all day. I will continue to pray.

Marion said...

A sister in RS was recently sharing some tough experiences she had. She said, "You know how we're taught that God doesn't give us any more than we can handle? It made me wish God didn't have so much faith in me!" You WILL get through this difficult time even though we all wish you didn't have to endure any of it. Our prayers are with all of you.

fle said...

Kristin,

I am back in Provo and would love to help out any way I can. I am only an hour away. I could come up and stay a full Saturday if you need me too. Or whatever. Call me. I mean it. 801-513-0189.

Ali said...

Prayers....done. Fasting? We'll do it to, just say the word. Wish we lived closer and could help out more. Would love to leave the kids in Cedar with their grandparents this summer and come for a week and help if you need it.

Love-

Ali