I don't have much to report on today, Brinley is feeling sick and grouchy and we have been watching TV all day so far :) One of those days. Her hair started falling out yesterday and today, so I expect in about a week or two it'll be so thin we'll probably just shave it. Of course she has tons of hair, so who knows how long it'll take to get super thin! I can't picture Brinley without hair. I guess I was kind of hoping it just wouldn't happen to her, denial, you know? I'm sure she'll be a cute bald kid. We ordered some cute cancer T-shirts for her. One says "Cancer messed with the wrong DIVA!" That screamed Brinley when I saw it, I had to get it.

I was wondering how much medication a little body can handle this morning when I was giving her her meds. She's on dexamethasone, septra, oxycodone, prevacid, and a laxative, not to mention the vincristine going in each week and cytarabine going into her spine. Yikes, that's a lot of stuff going into her! It's funny how when they first gave us all the sheets on the meds she would be taking, I was so overwhelmed and didn't think I would ever get it straight what each medication is for. Now I can recite each medication from memory when they ask me and how she's taking it and what it's for. I guess you learn when you have to! No wonder she always feels so yucky!


Amy said...

I grew up across the street from Jenny and Emily (cousins to you I think?) I follow her blog that lead me to yours- I just wanted to let you know we are praying for your little hero, and your family! My nephew had brain cancer, so we are all too familiar with what you are going through- Keep your head up Mom, you are doing GREAT!

Anonymous said...

Hi Darlings, Your post today took me back to the hospital room the day we got the "good" news about having just the "bad" type of Leukemia and sat on the bed in amazement at the matter of a fact way you were asking the nurse how soon Brinley would start losing her hair and would it be all body hair etc. I think it may have been at that moment you redefined motherhood to me. You REALLY gave me strength for these days ahead. I also looked at her handsome shaved daddy and thought "she will be very cute with her "temporary> new look. Having said all that my heart is still very heavy for all of you and know that you are very seldom out of my thoughts. I will continue putting your names in the SLC & Jordan temples every two weeks if that is ok? Love & ton of hugs to all of you..
Aunt Nancy

Sole said...

Hi guys!
I just wanted to let you know that we're thinking about you! I love the T-shirt saying, you should take a picture of her in that! With that face, she'll look nothing but CUTE! even without hair. I love you guys! Reading your blog everyday gives me so much strength! Eventhough I worry and feel down sometimes knowing that my sweet baby Brinley is going through all this, I have this reasuring feeling that she's going to be over this soon. Thanks for sharing your day with us every day! Give the girls kisses!