Well, today is starting out good. Brinley finally ate at 7 last night. We gave her some oxycodone for her jaw pain and waited a little while. She still refused dinner, so David decided to force one bite in her mouth so she would see her jaw wouldn't hurt if she bit down. She reflexively bit down, and realized there was no pain. Boy, did she eat after that! She drank 2 or 3 cups of milk, ate a bunch of taco soup and fritos and was a happy girl after that! She must have been starving! We were so happy, we had been on the verge of panic with her not eating or drinking! She still looks a little dehydrated today, but we are trying to pump as much fluid in her as we can. This morning she won't eat, but she has a few glasses of milk, so we are happy with that. We are mainly worried about dehydration for now. Hopefully in the next couple days her appetite will increase. She goes for her first clinic tomorrow morning. We are not sure what to expect. She will get her chemotherapy and they will check her blood counts. They will also do another bone marrow biopsy to see how the chemo is working on her leukemia. I don't know how long the results will take, but hopefully quickly. I know every person responds differently and we really want to know how Brinley is responding. I think we will be there all morning, so I'll report when we get back!

Thank you to everyone who is putting up words of support for us. We cannot believe all those people who are there cheering us on. Even people we don't know have taken the time to post words of encouragement. THANK YOU, THANK YOU, THANK YOU! It truly keeps us going and has helped us realize how wonderful people in general are. There is so much good in the world and we have experienced so very many random acts of kindness, from the people working extra hours in the dry cleaners to get all our laundry done so we would have clean clothes when we got home (thanks to Dad), to neighbors that we didn't even know coming over bringing toys and words of encouragement. We are so grateful both to those friends and strangers who have rallied around us in support. I get choked up every time I think about all of you. I have come to the realization of how desperately we need you all. There is still so much more to come for us, I know that we are only in the beginning and there will be some ups and some downs, so thank you for being there for us.

6 comments:

Early said...

We are thinking about you and your beautiful family. Everything will be okay! Just keep your chins up and hold tight to each other.

We sure love you!

The Romans
Darren & Early

adam said...

David and Kristin,
I just want you to know that Adam and I are praying for you both and Brin. As I looked at all the pictures and read the posts my heart just ached for you and all that your family is going through. It is so hard but you are doing so good!!!! You will get through this! Continue to be strong and be there for each other. We love you!!! Adam and Susi

Ashley said...

Brin is SO beautiful! I keep thinking of her as a baby. I just want you guys to know that you are in our prayers and we love your family so much. Let me echo the words of encouragement: It's amazing how much stronger you are when the time demands it. You guys will pull through this tighter than you were before. God bless.

Ali said...

Ran into your mom at the library Saturday and heard the news (I've never shed tears at the library before...people must have thought she and I were nuts). We are all so sorry. You are all in our thoughts and prayers.

The Thompsons
Tripp, Ali, Kyle, Abbie & Daisy

todd and angie purvis said...

we are thinking of you guys all the time,Taylor be the big Sis you are
we love you
Daddy and Angela
Scott and Tiger

Fiona Mathews said...

Kristen...I still get the Southpointe e-mails and I am so sorry to hear about this. I live about 30 minutes from SLC. I would love to help out in any way I can. Maybe you and David need a date night? I have 2 days off a week and am done by 2pm on Saturdays. Please e-mail me! I would love to baby sit! fiona.mathews@yahoo.com