9/8/08

Not much new to report today. Yesterday was a long day at home. Brinley is really grouchy and having a hard time eating and drinking. She at good finally yesterday and drank enough that she wasn't dehydrated, but she hasn't eaten or drank anything today at all, and it's almost 2:00. So we are getting nervous. The nurse told us that if she starts losing weight, they will put her in the hospital on a feeding tube. We really don't want that, but cannot find ANYTHING she will eat! I think it might have to do with some jaw pain, one of the medications can cause that. Everytime she tries to take a bite of something, she holds her cheeks and cries. I will probably call the clinic today.

The in home nurse came over today to watch us flush her central line and make sure we can do it every day by ourselves. I was so dang nervous I was shaking trying to put the syringe into her line. The nurse was probably laughing inside, because she said this will eventually be like changing a diaper. But I had to clean the cap 3 or 4 times, because I kept letting things touch it (she was kicking and mad) and if anything at all touches the cap, she can get an infection. I finally got it done and hopefully between the two of us we will be fine on our own tomorrow.

David's parents were here over the weekend and left today. They were a great help, we were sad to see them go. My mom will get here tonight to help when David goes back to work. Thank goodness, I don't know what I would do by myself yet! It seems like she's crying all day long, poor girl!